YOU NEED TO KNOW …..
1. 95 to 98 Percent to Research – For many years we have consistently had an AFR between 2-5%. That means that over 95 cents of every dollar donated goes to Parkinson’s research. The founders pay, out of their own personal funds, for all expenses (the 2%-5%) to administer the Parkinson’s and Brain Research Foundation. Therefore, it is more accurate to state that 100% of your gift goes to medical research.
Continue reading CFC Donors … 2024 Message from the President
As a physician and a scientist, I study a rare disorder, Gaucher disease. I have been motivated to continue to study Gaucher disease for the past 25 years because I feel that our understanding of basic aspects of this disorder are still lacking, and that my patients with Gaucher disease, whom I have grown to know and love, will benefit from these discoveries.
Parkinson disease is a common disorder that is known to have a complex inheritance. This means that unlike Gaucher disease, which results from mutations in one specific gene, Parkinson disease can have many causes and many genes likely contribute to how the disease presents. Patients with Parkinson disease develop a resting tremor that often begins on one side, but they can also have slowed movements, unstable posture and gait, and at times, dementia. It affects about 1.5% of the population over age 65, and the risk increases with advancing age. There are disorders associated with Parkinson disease called the Lewy body dementias that have similar manifestations, but more progressive dementia.
Continue reading Parkinsons Gaucher story … by Ellen Sidransky M.D.
The Parkinson’s & Brain Research Foundation strives to be as efficient as possible. Our AFR is consistently between 2-5%.
Less Expenses = More Research = More Results
As a result, 95 to 98 cents of every dollar spent goes to medical research.
The Parkinson’s and Brain Research Foundation is supporting leading medical scientists in the United States and Europe who are pursuing a 21st century approach to finding a cure for Parkinson’s disease. Prominent researchers at Harvard University, the National Institutes of Health, and University College London discovered the most common genetic risk factor for Parkinson disease – mutation of the GBA gene – a gene that causes a rare hereditary brain disorder called Gaucher. Carriers of this Gene are predisposed to the development of Parkinson’s – and – Recent and unexpected findings show the possibility of a shared pathogenic mechanism. The Parkinson’s and Brain Research Foundation is seeking a cure for Parkinson’s by funding medical research with prominent scientists who are focusing on the GBA Link. Medical history is awash with examples of progress being made on one disease as a result of links to another disease. Our International Scientific Advisory Board chooses cutting-edge multi-disciplinary medical research – research that takes a 21st Century approach – a new approach to solve the mystery of Parkinson’s.
One Small Discovery – can unlock the mystery. Your Gift – can help find a cure.
The only thing incurable, is our passion!
Yes – Parkinson’s and Brain Research Foundation is run efficiently. Yes – we work hard to have extremely low administrative overhead. Yes – the founders pay, personally, for the administrative overhead. Yes – this all means that 100% of your gift goes to medical research.
Over and over we are asked, “Is it true that 100% of donations go to medical research”? The answer is YES. 100% of every donation goes to medical research. All costs for postage, printing, website development, etc., are paid for by the founders.
There may not be another charitable organization that can make this commitment, therefore it deserves an explanation.
